Aspergers

This is a word I was not prepared to hear one year ago, but one that I was relieved to hear today! Last year, to label my son with a diagnosis meant that we had to deal with what we feared for a long time. We weren't excited about the news we got, in fact we were numb! After denial, came mourning and then action. I began to research everything and we began therapy. The more involved we got, the more I realized that we were dealing with a lot! Today, I realize that had I been honest with myself we would have gotten here sooner. But I do not think that I could have handled that at the time. So now we change direction, and we look at things from a different view.

Still Here!

Well, we have been on one more ride since the last time that I blogged!! Turns out that the med adjustment wasn't a good thing at all!! He had a horrible reaction to it, but we are back to "our normal" now!! School is going OK, and he is working very hard to keep up! I am so proud of him!! Addison is doing well, she is taking dance lessons and getting ready for her very first recital!! I am so excited to see her on that stage! She is such a trooper too! I can only imagine what she thinks about what Drake goes through and she is always there to give him a hug and support him and he depends on her a lot too!! They are so very strong and I pray that they continue to be close and that she doesn't grow to resent him! Right now, she handles him better than the rest of us! We are making it right now and that is about all I can say at the moment! We don't really know from day to day if things will get better or worse and we are learning to cope with every situation that comes our way!

Update

It has been almost a month since I blogged! We have had quite the struggle with OCD since Thanksgiving and I have been too discouraged to write. Drake is still struggling daily, school is very difficult because he has to work so hard to appear like a normal 7 year old that he doesn't always stay caught up with his schoolwork. We did have some more testing done to see if he has an autoimmune type of OCD and it confirmed that he does not. We have adjusted meds yet again and we are working closely with school to make sure that he gets back on track. My heart is breaking for him and I want so bad to fix it and I can't. He is tormented by this horrible disorder every day and it isn't fair!

OCD SUCKS!

The title pretty much sums up how I feel right now. I was just looking back at my blog and noticed that on Nov. 13th we were making progress and now we are back to a bad place!!! The week after Thanksgiving, Drake got sick with a stomach virus and he hasn't been able to get back to his normal since! I have been doing some research and looking into the possibility that Drake has PANDAS OCD, which is cause by a type of strep. We are moving in the right direction, I have contacted a doctor in Chicago and we are in the process of setting up some test so that we can confirm or deny. But, in the meantime I can't stand to see my son having so much trouble. He is fighting so hard and it is heartbreaking because I want to fight for him. I want to take this away from him. I can't bear to see him in so much pain and be so helpless!!! So, OCD sucks bigtime and I hate every part of it and I want it to leave my son alone for good!!!